Hi all, sorry I know it's been a while. Recently we lost an amazing man in our family. He was a kind hearted, hard working, gentle man. He had battled Alzheimer's for some time now until he could no longer fight.
More research needs to be done. There are medicines out there to slow the disease down, but there is no cure, more needs to be done!!!! The problem is as with most research projects is getting the funding necessary to find a cure. Support, Support, Support- these research foundations such as Alzheimers and Kids v. Cancer so we can find a cure. Really it's up to us.
Some more bad news, our friend Stanley whom we went through chemo and stem cell transplant with has recurred for the 2nd time. It has traveled rfom his kidney's to his heart. He is scheduled for a biopsy on Mon. I went out to see them at Schneider's last night. He is amazing, he told my friend Christine just give me more Chemo so I can get better. It's heart braking and so unfair!!!! I felt guilty leaving the hospital, Alec has his problems but we are home, and it's like they are starting all over again. I feel so helpless, I just want to hug them both and make it go away. I feel Christines pain, and it's burning. I'll keep you updated as i find out.
School's in session, Alec continues to go part-time. We are looking into more p/t for him. He's stable right now, but we want to see him stronger. I have an appt. tomorrow with him in Huntington at a pediatric gym, I'll let you know. I know this is short but i gotta run.
xoxox -Amy