Season"s Are Changing

Here we are. Cooler weather is upon us on this chilly October morning... which today is my husband's 40th birthday WOW!! :-)
I started alternating clothes, out with the summer in with the fall/winter.

When I found out we were expecting Sean I slowed down on discarding Alec's clothes. Yet now; I can't see that Sean will actually wear them. Alec's raincoat, Clifford, his shoes and my favorite outfits to see him in remain together. I can't see ever being able to put them on Sean. It's a weird feeling, an over protecting feeling I can't break.

As for Kevin, my little trombone player. Well he is growing like a weed, almost as tall as me. We have now reached the bottom of my nephew's hand me down's. Which is another hard situation also. Seeing their clothes, reminds me of my nephews whom I never get to see because of stupidity and heartless words spoken at one of the mose difficult times of our lives. So be it. Okay- enough venting onto more important things.

Our friend Hannah just had her MRI and CLEAR.. Whoo hoo, go Hannah. All though her MRI's remain clear which thank the Lord for that, her radiation and chemo aftermath continue to take a tole, it appears that growth hormone injections are in the near future as they are with Alec.

Now our friend Stanley, he made a trip to ICU recently because his heart was racing, he is now stable and back on Med 4, whew. They wanted to send him home on hospice but Christine is not hearing it! I don't think I would either. His latest scans after receiving chemo and radiation showed no improvement, no growth either which to me is good. I did some research for her, some of which I have as an insurance policy for Alec "Just in case" as of right now they are going to start him on more high dose chemo. The problem is they don't know how much his heart can actually take. Christine feels; if it's his time, God will take him. Stanley told Christine he is not ready to give up, he want's to keep fighting. My God it's so unfair!
Looking outside of the picture I can see both sides, the quality of life concern on the Dr.'s behalf and the save my son's life at whatever it takes Christines view. Pediatric Oncology how does one have the heart to chose that field. I mean I know it's the hopes to make a difference. Save children's lives. But to lose one, I don't know I couldn't do it.
Well I could go on and on but I have some calls to make, Alec's blood pressure has been low lately????? He's off of his Norvasc, and he is very sleepy. He has a cough and Mark is concerned about pneumonia, so chest x-ray today and we'll see what specialist were off to first call to Ms. Alyssa.

Oh but one more thing his new aide in school, Ms. Donna AMAZING!!!!!! They pair up really nicely and of course Mrs. Buccos is still his teacher. His new physical therapist is just what he needs. She is blinded by his disease and just focuses on what he can do and really pushes him :-) FINALLY!!!!! Some people are intimidated by him. Like he is this fragile little egg and what he needs a good kick in the butt!

He is also enjoying his Transformer bowling league, and is an amazing bowler. He even faired well yesterday after Sean dropped a bowling ball on his foot....OUCH!!! and then Kevin accidentally poked him in the eye :p poor kid, but yet still laughs about it when he's awake. He has been so sleepy lately????

Okay gotta run and make some calls.

xoxox
-Amy