Tuesday, April 8, 2008

St. Charles Rehab Update




Well Alec has gained a whopping 12 pounds, he is weighing in at 48 pounds :0) His appetite won't quit, eating and swallowing is no longer an issue. He wants to go back to school in the worst way. Soon my baby, I am hoping by the end of the year to have Alec in a "classroom setting" if only for an hour a day. He really needs the interaction.
We had a beautiful visitor, our friends Hannah and Kim. Hannah and Alec met up at Schnieder and had the same surgeon and Oncologist strange enough :) You see her here at this posting. She had her port taken out today and was so brave, we are so proud of you Hannah!
Alec has a little crush I think, it's really cute, he picked out this heart bag and filled it with some of his favorite things, he told me he wants to give Hannah a kiss on her cheek, LOL He even specified her cheek, I can't even tell you how cute it sounded.
He is working hard at rehab, it's hard on him though, he gets tired so easily. He is getting into a routine now though. We told him to be like Rocky and he makes this rrrr face it's so cute.
You will see him here with a smile on his face with his PT, Bill; but trust me he is not always smiling, although today was a good day for him! He is not even close to walking on his own yet or even with a walker, he has alot of trunk weakness.
Speech is going well, we are working on having him speak louder; he yells into his American Idol microphone we call it. OT is hard because he has the shakes still really bad in both his hands, arms and head.
He has been enjoying the wii lately though, the use it as therapy, amazing therapy at that, WOW! We might get him one for home, I heard they were sold out for a while but my friend Kim mentioned Walmart. We have time yet though before he comes home; he stopped playing x-box a while ago and won't play with Kevin, but with the wii he just moves his hand and the character does the move it's alot easier for him and work his fine and gross motor skills. His favorite games so far are Spongebob (of course) Atlantis, and Shrek.
We will be in the hospital I think for a few more weeks. He is just starting to get the schedule down and be cooperative, they don't want to rush us out too soon when a longer stay he will benefit from.
Well enjoy the pictures!

2 comments:

Anonymous said...

Hello. This post is likeable, and your blog is very interesting, congratulations :-). I will add in my blogroll =). If possible gives a last there on my blog, it is about the Notebook, I hope you enjoy. The address is http://notebooks-brasil.blogspot.com. A hug.

Anonymous said...

Your blog keeps getting better and better! Your older articles are not as good as newer ones you have a lot more creativity and originality now keep it up!