Of course we have Halloween in there, can you guess who Alec was, LOL A picture of Dr. Hynes and Ms. Moran making a visit to our house to say hi to Alec. This was Dr.Hynes day as our school principal and he wanted to say goodbye to Alec. Our school, Clayton Huey is amazing and we have been so lucky to live in a district with caring and loving teachers and school personnel. Alec's teacher this year is Ms. Buccos, aka Ms. B Alec has a hard time pronouncing her name. She is warm and gentle and caters to Alec. She understands him pretty well even considering his speech impairment.
I am working closely with Ms. Henninger to get Alec a communications device for school. So far it's down to the Tango, I think it is the best for him. He actually was talking about in all night. It will take time for him to learn how to use it, but I feel it's the best choice.
Other pictures of course is Kevin making pumpkin pie with his classmates. And then you see our hospital friends from a couple of weeks ago, Ms. Alyssa, Jan and Ms. Meg talking to Alec's classmates about Alec returning to school and how he is just like them.
Alec has a modified day, he is only in school a short time and gets all his pt/pt/speech at home still. His immune system is still low and he is fatigued alot so this is best for him right now.
He is doing well on his bipap machine. That took alot of tweking fitting that in his day. His pulmonary Dr. recommended it over night, well he hydrates overnight so no good, so when he naps during the day and at night for a couple of hours before I drop the ng tube he is on it. His diaphramn is pushing up into his lungs so the bipap machine pushes pressure in while he is breathing to exercise the diaphram so to speak. He still needs hydration over night his recent MBS showed he does aspirate thin liquids still but his swallowing is improving everyday. I even stopped his robinal, drooling medicine and he is doing well. Occasional drool drips but so much better.
Well I gotta run ENT and then off to swallow therapy.
Keep the faith,
Love,
Amy
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