Monday, December 8, 2008

Ports Out, YAY!!


Well today went off without a hitch. This is a picture of Alec leaving the recovery room with Daddy port free :}
Dr. Glick successfully removed Alec's entire port. He asked me if I wanted to keep it; and of course I said yes. This little thing was his life line for a long time. It's pretty interesting looking and you can see the impressions from all the times he was accessed.
After surgery he was uncomfortable they gave him some phentonal, sorry not sure of spelling, and he is doing much better now.
Alec said to Mark when they were leaving, now we don't have to come back here anymore, Marks eyes filled up with the tears because he or I can't even say never, but we are in a good place right now with him. Alec is in a good place now. Everyday some more imporvements. He is eating peanut butter and jelly sandwiches, just regular sandwiches nothing mushed or watered down. And his favorite is fried eggs with ketchup he eats eggs praticlly everyday.
He continues to build strength, balance of course is a big issue but Dr. Atlas said if he has the stregnth it will help him with his balance.
On an educational note, a new nurse was hired and she is only available 3 days a weeks. Thats okay because as it turns out she is one of the awesome nurses from PICU at Stony Brook. We had 2 favorite nurses while we were there, Jason and Pat. So of course when she called I was jumping for joy. I feel soooo comfortable having him in her hands, I know he will get exacly what he needs, she is such an amazing person.
Well I hate to just throw this all at you but I am trying to fit as much in as I can in the short amount of time I have available.
Thanks for your continued prayers. And please pray for all those still fighting.
-Amy

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