With good news there comes bad news. Alec still is not tolerating food. He is being fed through IV, an angio tube (through the nose to stomach) would not work in his case because his stomach is not tolerating food. His blood pressure has been running very high, 150/101 range, he is currently on a blood pressure medicine (Nyphetapine) which appears to be working. He continues to need Bolus, potassium. His White blood count and total ANC is 0 t present time, which makes him vulnerable to illness.
He had a spinal tap on Thursday to check the fluid pressure and it was normal.
MRI NEWSFLASH
Brain and neck still remain clear and cancer free.
Spine- top tumor gone no evidence of metastasis, bot om tumor shrunken in size. Dr. reports at worst it looks very favorable :0)
I am confused as to why they want to do a shunt and why the Gastro Internist have not yet preformed an x-ray with contrast in Alec's stomach. He attempts to eat and 10 min. later he vommits it up. The Dr. wants to do a shunt in case he needs one in the future and he is in the transplant unit then they couldn't preform the surgery.
Well I don't want breast cancer, should I have both breasts removed just in case. To me if there is no sign of hydrocephalus why look for trouble. To me you are adding the possibility of the body rejecting the shunt and causing infection during the stem Ceil transplant. It's not definite about the shunt, but the OR is scheduled tentatively for Tues. morning, i'll keep you posted.
Spirits:
Alec is restless, not wanting to leave his bed. We'll have to do some exercises tomorrow. He just wants to go home and see his dog, Jack.
I bought some games Mouse in the House, I figured it would be good for working on hs fine motor skills. And we always play Blues Clues memory, he beats Mommy everytime, so it has become a favorite of his.
Speaking of Jack, our poor puppy has spent the past 8 days in the kennel, and when I picked his up he has a stomach bug and is currently on medication. He is home, and with the help of our very dear friends: Annie and John M., Laura and Paul R., Tracy and Scott S. Jack can stay home, in his own environment and recover. Thank you guys :0)
I was thinking, Alec has a computer in his room, we are going to have a contest to see who looks the silliest, Alec alone will be the judge: Please email me your name and picture to:
Mardjana@optonline.net
This is not just for kids, its for all our friends, to make Alec's stay a little fun and to know his friends are thinking of him.
Saturday, August 11, 2007
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