Friday, August 3, 2007

In for more chemo

Here we are again, this is our last round of chemo before his stem cell transplant. Sadly enough he is use to the hospital stays, but continues to miss Jack, his dog. We drop him off at the kennel together and it is nice because other dogs are their and Alec is happy he gets to play with some friends instead of being home by himself.
My husband stayed with Alec last night, and this is the first time we started chemo with no vommiting, WOW :) They changed his anti nausea medicine as I mentioned before. And I added MonaVie to his diet, a nutriotional supplement. He is definately higher in spirits lately. Before his operation he made this really funny voice straining his vocal cords kind of thing, anyway it was really funny and recently while I was driving he was playing around with Kevin and he did it, he did the voice. It just made my day, I wanted to cry.
Alec continues to excel in his home schooling. His teacher Miss. Moran, a saint, has continued to work with him over the summer. He hasn't missed a beat as far as what he has aquired this past year in Kindergarten. Mark and I are holding him back this year though. He has been out of school since the end of Feb. and he has to have the stem cell transplant in a month. The hospital stay will be 2 months straight, which I am so nervous about. He will also require so much follow-up and clinic visits, that to move him on to the 1st grade will just add unnecesary stress on him.
I explained to him and his briother, Kevin that Alec didn't finish Kindergarten so when school starts again he has to go back and finish it before he can go onto 1st grade. Alec really doen'[s know the difference anyway.
I reistered him in religion for 1st grade because technically he is in 1st grade so he can goto religion with his dear friends Jacob and Nathan. I figured this way he doesn't feel so different.
I have been doing alot of wholistic research to help Alec fight this ugly disease, and you really can drive yourself crazy. I have read about your Ph level in your body being to acidic, yet lately Alec has been craving orange juice. Also prior to his diagnosis he lived on peanut butter and jelly sandwiches and the website I was on mentioned how bad peanut butter is for you, that cancer feeds on sugar. So of course I startthinking your body craves what it needs right, at least thats what I was told. So are Alec's cravings coming from his cancer to feed it so it lives, or is the orange juice the vitamin c he needs. This is why my husband tell me to stay off the Internet.
Well, the good this is Alec is doing great, he does however appear to have some swelling on his right eye, we'll be discussing this with the Dr. shortly.
We will be meeting with the transplant team by Monday to discus the game plan. It was briefly mentioned to us about Alec needing to have a broviack (not sure of spelling) put in, in addition to the Port. With the Port the needle has to be changed every 4 days and with the broviack, 2 tubes directly inserted into a major vein. It will avoid numerous sticks. To put this in he will be sedated and it takes about an hour.
Well thank you all for your continued prayers. I will continue to keep you updated.

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