A New Week, A New Tale

Alec has had a rough week. We met with the ENT again, hearing is as stable as can be. We were recommended speech therapy because he will have some difficulties hearing the t, f, sh, th sounds which will overall effect his reading.
I was gathering copies of records on Tuesday from LIJ and I stoped in to see his Dr. to just give him a heads up on his unstable walking and shaking of he hands while eating or drinking and shaking his head like a Parkinson's disease shake, not seizures or anything, and his speech seemed a little slurred almost like how he spoke after the tumor was originally removed. He was concerned and scheduled him an emergency MRI the next day, Wed. and immediately started him on decadrone for swelling. As it turns out Alec is having some radiation effects to his cerebellum area of the brain, the original tumor site. He has some swelling and fluid build up. I have to keep him on the decadrone for a couple of weeks. His Dr. tells me that it shouldn't be permanent. The lesion on his c-spine is still stable, no change. Now he tells me that it might even be a blood vessel, so he doesn't want to treat it. We will just keep watching it.
Meanwhile...................... we have the folks at NYU looking at the scans, they will be calling me tomorrow to let me know what they think, and we'll go from there.
Alec is officially off his magase, thank goodness. Mostly by my doing. He is eating, forcefully, but eating enough to maintain his weight. We meet with Dr. Stills in Plainview next week to work up a holistic plan for him, she came recommended by our friend Samantha, Josephs Mom, thanks :0)
In the interim I buy mostly organic foods now, milk, cheese, butter, cereal, meats etc. The fruits and vegetable go bad faster and taste a little different but we are minus antibiotics and growth hormones. It's a lifestyle change, but you do whatever it takes when it comes to your children. Well thats all for now.
I'll update you on NYU dx as soon as it comes in.
-Amy
P.S. Thank you Friends of the Center Moriches Library for our private sessions, Alec really enjoys it :0)