Okay vision therapist worked out nicely, very impressed! He is alot better than his original therapist during the school year. Speaking of school year I can't believe how fast everything is sneaking up on us. MRI is right around the corner, kids need clothes for the fall, jackets etc.
Alec has been having his night frights again. If he would just sleep at night he wouldn't be so tired during the day. I'm gonna mention this on our next Dr.'s visit next week. We just don't know what to do. He is convinced someone is in his room to hurt him. Still working hard at trying to get him to walk. He is improving with his fine motor skills. When he draws he has smaller strokes than he used to. He has more control :) yay!! I was at a meeting last night at play fit stay fit and Mark said he sat for 2 hours drawing. The meeting or focus group they call it was good. We cried laughed and made some suggestions on how to possibly improve the program. Play Fit Stay Fit is his physical therapy he gets outside of school twice a week funded by the Lance Armstrong foundation. I suggested maybe doing a 10 min. cool down session; I know Alec really needs the one on one which is GREAT!! But he also needs to be brought into the group. There great there so it will be fun to see what they do in a few weeks, can't wait. Ray, one of the program directors donated to us a special needs stroller, it's light and convenient and unlike a wheelchair, it will fit in Marks trunk. And best of all it's light. Did I mention it's light, HAHA. My arms are so big from lifting Alec and his broken down wheelchair all the time, it will be a nice break. It's not something he could spend all day in though because it lacks the supporters he needs, but perfect for quick store run ins and stuff. Other than that just waiting for MRI's and actually to see if he is producing his cortisol yet. Okay gotta run.
-Amy