MRI Results are in

Stable, All is stable in the brain meaning the necrosis has stopped forming and there has been no further improvement since the last scan. As for the lesion in the spine, that too is seen as stable.
I must apologize for not updating sooner but March has always been a month from hell for us. We tried to stay low key and get through it. March marked the anniversary of his diagnosis, 2 years now and the to the date the necrosis caused hydrocephalus. We proceeded into April cautiously, Alec spiked a fever here and there as the end of the season illness made it through our home. Alec escaped it for a short time though, surprisingly considering his immune system. We celebrated Sean's 2nd birthday in the hospital; Alec was still experiencing some steroid crashing and sleeping a good 18 hrs a day. We took him in for a quick scan because sleepiness is a sign of hydrocephalus and he had one complaint of a headache but with our experience one is all we need. Scan came back fine as his Oncologist PA, Ms. Alyssa and Dr. cited it would but as always, completely understands our concern. His steroid was bumped up, decadrone, uurghh! But with a semi quick taper. He's back down to his usual extremely low dose with hydrocortisole and doing well. As we now apporach mother's day; it's another mark for us. As you remember, we lost him last year, in my arms sitting in the hospital as Mark screamed for the emergency staff to do something! While Sean and Kevin sat in the room next to us with a nurse, So May not another good month for us.
Kevin started baseball, and what an amazing player he is. His game has really improved since last year, he wants to join track this year because and I quote "It will teach me to run faster so I can do better at baseball". How could you say no to that.
Sean will be getting speech services soon, we had him evaluated through Early Intervention and he qualified. They are also recommending a Mommy and Me program for him because he is lacking some socialization skills with other children, and considering he is always around them caused some concern. The meeting to draw up his IEP is in 2 weeks.
Other than that all is the same here, with the exception of me :( I've been battling flu like symptoms for 3 days now. Of course there is some concern being that my niece goes to the school where the 3 cases of swine broke out in Deer Park. But chin up, air purifiers on full blast, and I am quarantined in our upstairs bedroom and husband is in full control.
May is also brain tumor awareness month so wear your gray to show support.
Gotta run hope this finds you all well.
The Mardjani Family